Remembering where we were

When I have doubt or fear that Ryan's progress is too slow or that he'll never "get there", I often re-read my personal diary that I sometimes keep.  Usually I only write in it when I really, really need to get stuff out of my head.  It's often in stops and starts.  Sometimes I'm writing a book, sometimes a poem and sometimes it's just random ramblings.

I recently read an excerpt about the day when I realized, to my very core, that things weren't going to be an easy ride for my guy,  He'd finally started with the Occupational Therapy (OT) for his handwriting,  This was about halfway through 3rd grade.  We were thrilled.  Finally - we thought.  We'd waited a year for these services.  In the initial report that we received it was noted that when the Occupational Therapist asked Ryan to identify the letters of the alphabet he could correctly identify about half of all the letters in upper case and about a quarter of the letters in lower case.  I cried.  I cried like I have never cried before.  Then I marched over to the school to discuss what our next steps were.  We were dumbfounded.  How can a child get to grade three and NOT know the letters of the alphabet?

This is when I began to truly understand the depths of Ryan’s disability.

Getting back into routine

We survived the holidays!  Yay to us!  Few meltdowns, lots of visiting, way too much food and a good time was had by all.  We hope that everyone had a great new Year's Eve!  Now that all of the festivities are over, everyone is getting bored and restless and we're ready to get back into routine.  R has been doing his homework every day this week.  Although he protested mightily at first, I think he's actually glad to have this one thing that is routinized in his day.  Yes it's all good to be without a timetable and schedule and to wake up late etc.  However, when you have attention and memory issues, routine is the best thing you can do to support yourself.  I know for my own self that if I have a change in my routine, that's when I'm most likely to leave my phone at home or some piece of my lunch gets left on the kitchen counter.

This doesn't mean that you can never have a carefree lifestyle or that you are bound to a schedule forever.  It simply means that making small routines throughout your day will go a long way when it comes to memory or attention dysfunctions.  For example, breakfast, bed and bath and dinner routines can help make these times a little less chaotic and the whole process can run more smoothly.  As children get older and become more responsible for their own routines, having these foundation routines can make this transition easier.

Keeping the kids into routine where possible not only keeps them on track but keeps me on track too.  It's good to take a break from routine.  It shakes things up and allows for different experiences.  It's also nice to have some familiar friendly routines to come home to.

Cheers!